Projects to combat domestic violence and change gender stereotypes are being implemented in Uzbekistan
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Podrobno.uz [uz]
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Projects to combat domestic violence and change gender stereotypes are being implemented in Uzbekistan

In many parts of Uzbekistan, situations are observed where young girls are married without their consent immediately after finishing school, and women live under constant control over finances and phones, which is often perceived as the norm of life. However, such cases demonstrate the diversity of forms of domestic violence that are masked by the generally accepted idea of family.

The final round table of the project 'Safety and Freedom of Women: From Allowance to Practice' was held in Tashkent. The event was organized by the Latvian Center MARTA in collaboration with the Center for Support of Civil Initiatives and gathered about 40 representatives from state bodies, public associations, and international partners. Participants summarized the results of seven mini-projects implemented in various regions, and experts shared their experiences.

How to fight domestic violence trends

Iluta Lace, a representative of the MARTA Center, noted that the project aims to ensure women's safety both in public places and at home. The organization has been cooperating with Uzbek colleagues since 2009. Despite changes in legislation and the emergence of support services, Lace emphasized that a law alone is not enough. It is extremely important for women themselves to be able to recognize violence and know where to seek help.

The expert also stressed the need to train specialists who work with victims so that they can distinguish psychological violence from ordinary family disputes and not accept threats, pressure, or control as something normal. Before starting regional initiatives, participants discussed problems with local experts, taking into account local views on family, and developed methodological guides. Trained organizations then tested these approaches in practice, working with a wide range of people: women, adolescents, students, men, social service employees, and law enforcement officers.

Invisible violence and the cycle of aggression

The central theme of the round table was violence that is difficult to notice from the outside. While physical violence is often obvious, prolonged prohibitions, humiliations, isolation from relatives, and control over money and phones can be perceived for years as part of the usual family life. Psychological, economic, and digital violence often goes unnoticed even by those who experience it.

Iluta Lace recalled the mechanisms of control and the cycle of violence, which includes a reconciliation phase after threats and cruelty. Therefore, the question 'Why won't she just leave?' is rarely a correct starting point. Leaving can pose a special danger, and the woman needs not an assessment of her action, but a risk analysis, a safe action plan, and coordinated work of several services.

The expert emphasized that the responsibility for violence lies solely with the perpetrator, and it cannot be shifted onto the victim by citing her character or desire to save the family. At the same time, the specialist must clearly understand their limits: depending on the situation, either legal consultation, medical assistance, intervention by internal affairs bodies, or support from social workers and 'Inson' centers is required.

Participants also discussed the emotional burden on consultants, noting that without professional support and interaction with colleagues, they risk burnout.

Engaging men and expanding the audience

Representatives of regional projects shared their experiences. For example, in the Yangi-Namangan and Davlatabad districts of Namangan region, it was found that families often arrange engagements for daughters when they are in the eighth or ninth grade, while the opinion of the girls themselves is ignored. For some parents, continuing their daughter's education is not a priority; their plan is for the daughter to finish school and get married.

However, during consultations, the girls voiced different goals: they aimed to receive tutoring help, enter university, learn a new profession, or start their own business. Specialists concluded that it is impossible to talk about protection from violence without addressing the girl's right to choose her future. If decisions about marriage and education are made by others, economic dependence is formed long before the wedding.

The women themselves suggested including their husbands in the project program. Organizers began involving imams and discussing with families the possibilities for girls to study, work, and independently manage their earnings, and these topics were even raised during Friday sermons.

In parallel, specialists provided women and girls with skills to increase their independence. 150 people who had experienced violence or were at risk participated in baking and national crafts courses. According to the organizers, about 30% of these participants were able to start their own small businesses or work for themselves, which, although it does not solve all family problems, gives the person greater freedom in decision-making.

Furthermore, seminars on violence prevention were held for more than 600 schoolgirls. Educational events reached 750 residents, and legal and psychological consultations were received by over 400 people, while informational materials were distributed among 2,500 people.

Forming the right view of norms

The Samarkand organization 'Rahmatdillik' chose a different method of preventing violence before a crisis occurs. Organization staff went beyond their usual audience and started working in the schools of Pastdargomsky and Paxtachinsky districts. Initially, they interacted with teachers and school psychologists, discussing the formation of gender perceptions and issues of violence. Then, educators conducted classes for both boys and girls. Lawyers provided consultations, and prepared brochures were passed to parents through their children.

This approach allows the issue to be raised before the victim requires emergency assistance. In the school environment, respect, personal boundaries, and the right to make independent decisions can be discussed even before young people start families. Project participants emphasized that the goal is not to frighten children with a list of crimes, but to teach them not to consider coercion, humiliation, and control as the norm.

Recognizing violence through others' experiences

Zulfiya Khaydarova, head of the information and consulting resource center 'Yuksalish' from Kashkadarya region, spoke about how little young people are aware of the forms of violence. Her team worked with eight universities and found that not all young people know where to turn or what to do if someone they know has experienced violence.

It turned out during the trainings that some participants had themselves experienced violence, including sexual violence. During such sessions, female students cried or left the room because the discussion brought up memories of their personal experiences. Working with youth and families requires changing not only knowledge but also established ideas about the role of women. In Syrdarya region, organizers began by refuting stereotypes often used to justify inequality, such as 'A woman's place is in the kitchen' or 'A married daughter is a severed branch.'

The project representative explained that she often heard these phrases in trainings and everyday conversations. Therefore, the team decided to reach out to groups usually excluded from such meetings: military personnel, law enforcement officers, and men in correctional facilities.

Dialogue about violence in informal settings

In Andijan region, the organization 'Hamroh' chose a format that allowed the conversation to begin in an environment where the topic of violence was viewed with suspicion. The team worked in Andijan, Altynkulsky, and Markhamat districts. Observations showed that traditional views on family and women's dependence on relatives hindered open discussion of violence. It was difficult to bring residents to official seminars: some considered such talks useless, while others feared the word 'gender'.

Activists organized meetings in the familiar mahalla format—with tea parties, plov, and cultural programs. During the discussions, issues of family restrictions, women's rights, and religious interpretations sometimes used to justify coercion were raised. Gradually, dialogue was established, primarily with men, fathers-in-law, and older relatives. Lawyers, representatives of religious communities, and specialists capable of answering questions without mutual accusations were invited to these meetings.

During this work, the story of a woman who was afraid to leave home even for treatment was heard. Her husband warned her that if she left home to earn money in Russia, she would be considered 'triple divorced.' The woman remained in his family's home and avoided violating this prohibition. When she became ill and needed medical attention, she refused to go to the doctor for fear of divorce.

At the closing session of the round table, participants discussed proposals to improve the legal framework, work with aggressors, interdepartmental response, and NGO cooperation with state structures. Although hundreds of consultations, thousands of distributed materials, and dozens of sessions were noted, similar questions kept arising: will a schoolgirl be able to refuse an imposed engagement, will a woman be able to leave a dangerous relationship, will a student telling about her experience be heard? It is necessary not just to inform a woman of her rights, but to provide her with the opportunity to use them.

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Uzbekistan Achieves Progress in Treating Orphan Diseases Thanks to Women's Efforts
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Uzbekistan Achieves Progress in Treating Orphan Diseases Thanks to Women's Efforts

An International Women's Public Talk titled 'Changing the System, Changing Lives: Women in the World of Rare Diseases' was held in Tashkent. The issue of providing assistance to patients with rare genetic skin diseases in the country was first raised in 2018.

In 2020, the organization 'Kapalak Bolalari' was established at the initiative of Alena Yartseva's (Kuratova) foundation, 'Butterfly Children'. A significant step was the opening of the first specialized Center for Genetic Dermatoses in Central Asia in 2021, based at the Republican Scientific and Practical Medical Center of Dermatology, Venereology, and Cosmetology under the Ministry of Health of the Republic of Uzbekistan. The public talk was dedicated to the fifth anniversary of this Center.

Female experts from Uzbekistan, Russia, Singapore, India, and Croatia discussed how mothers can contribute to long-term social changes, and how the development of the support system for people with rare diseases affects women and their families.

All speakers had personally faced this problem but managed to find a solution. They united to support mothers whose children suffer from similar ailments, becoming a driving force for significant change, especially in Uzbekistan currently.

Rita Jain, Vice President of DEBRA International and President of DEBRA Singapore, noted the huge, yet often unnoticed, contribution of women to the healthcare system, focusing on mothers of children with rare diseases. She called them 'warrior mothers,' emphasizing that these women demonstrate exceptional resilience despite pain, guilt, and anxiety for their children's future. Instead, they channel their experiences into creation, helping other families and improving the lives of children with rare illnesses.

The example of Uzbekistan shows how the joint work of local patient organizations, founded by women, and large international structures like DEBRA yields results. Local groups solve community problems, while collaboration with foreign colleagues facilitates experience exchange and the search for common solutions.

This approach has allowed the country to achieve substantial progress in addressing the issues of patients with rare skin diseases, but the foundation of these rapid transformations is state support.

In 2018, dermatologists began systematically searching for patients with hereditary skin diseases, including ichthyosis and congenital bullous epidermolysis. One priority area was the formation of a National Register of children suffering from rare (orphan) and other hereditary-genetic diseases. Currently, 434 patients with congenital bullous epidermolysis are included in this Register.

In 2019, Presidential Decree No. PP-4440 was approved, which stipulated the annual allocation of 10.5 billion soms for the purchase of medications and dressing materials for these patients. In November 2025, measures for the period 2025–2029 were defined, covering ten rare diseases instead of the previous five.

The expansion of the program led to an increase in the number of monitored patients and a significant rise in funding. In addition to medicines and dressings, costs for molecular-genetic testing are now covered. Special therapeutic nutrition is planned for some groups of patients with bullous epidermolysis.

Parallel to improving treatment, the early diagnosis system is being improved. The last two years have been dedicated to training medical personnel to recognize the signs of bullous epidermolysis and correctly refer patients. A family doctor who discovers suspicious symptoms must know where to refer the patient for further examination. District dermatologists provide follow-up care and can use telemedicine for consultations and diagnosis clarification. Furthermore, public education is being strengthened; interaction with mahallas and educational institutions helps raise awareness about hereditary diseases and the importance of genetic counseling, according to Akram Rakhmatov, head of the scientific laboratory for studying mycosis problems at the Republican Scientific and Practical Medical Center of Dermatology, Venereology, and Cosmetology under the Ministry of Health of the Republic of Uzbekistan.

The Center for Genetic Dermatoses plays a key role in achieving these results. It is designed to serve 12 patients and operates considering the constant change of hospitalized patients. Here, patients undergo detailed examinations, after which an individual treatment and monitoring strategy is determined. A comprehensive assessment of the patients' condition is achieved through laboratory diagnostics and interaction with specialists. The Center functions as part of a republican specialized center, which guarantees the continuity of the process from diagnosis to inpatient treatment and subsequent control.

One of the Center's patients, Kamola Khaydarliyeva, shared that she has been connected with the Center for Genetic Dermatoses and the foundation for many years. Thanks to their support, she was able to gain confidence and change her outlook on life. She has four children and a mother in her family; her younger brother also suffers from bullous epidermolysis. She noted that previously obtaining necessary help was extremely difficult, and until 2008, treatment took place in ordinary dermatological and venereological dispensaries and hospitals. Later, she was invited to the Tashkent Medical Institute, where doctors from Russia provided dressing materials and taught proper care. After the establishment of the 'Kapalak Bolalari' foundation, assistance became regular, including free dressing materials and support in other areas of life.

Until eighteen, she felt lonely, believing she suffered from a unique disease, and did not envision her future. Now she knows she is not alone, has gained confidence, and is happier. Treatment gave her a 'second wind'; she started reading, developed new interests and aspirations, and a desire to travel and develop. Despite the difficulties, she obtained higher education at the Irrigation University, graduating from the Cadastre faculty, and has been studying Arabic for two years. In the future, she hopes to contribute to science, as well as start a family and raise worthy children.

Observing such stories and meeting people dedicated to their cause makes it clear that by uniting organizations and specialists for a common goal, changes can be achieved at the state level, especially when women, striving to help their children, initiate changes themselves and inspire others to real transformation.

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